AnOrangeZebra ⋅ 35
I'm from the Chicago South Suburbs, in the process of moving to Middle Tennessee. I'm just a midwestern girl in the bible belt. I have several disorders that I blog about in order to reach a wider audience. I have Ehlers Danlos syndrome (EDS), Pudendal Nerve Entrapment Syndrome (PNE) , Maythurners Syndrome (MTS), & Multiple Vascular compressions. My interests include Linkin Park & Mike Shinoda, One Tree Hill, Plants N Animals, Tattoos, crafting, & the color orange.
"I've been to the bottom now. And I may go back again. Even if I can turn back time. There are things out of our hands"
Entries 320
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2 months 3 days post op in Pudendal Decompression Surgery
Good things 1) Work has been going really well in the 2 hours I have 2) Few “good” hours still during the day, pain wise. I can move around more/ feel like I can get little things done that I cou...
2 months 2 days post op in Pudendal Decompression Surgery
Good things 1) Work was better than yesterday (pain wise). 2) Got a lot done in terms of planning, organizing music, and writing 3) Got to talk to my cousin AK on video for a good while. 4) The ...
2 months 1 day post op in Pudendal Decompression Surgery
Good things 1) Had a good kick off to my work week. I am only working 2 hours a day MWF for now. 2) I got outside to walk one lap around the cul-de-sac. (beautiful weather) 3) Made some new list...
2 months post op! in Pudendal Decompression Surgery
I am 2 months post op! Here’s what I have noticed: Things that are the same/worse now as pre op 1) Allodynia/ hypersensitivity to touch on the left side has not changed. 2) Nerve-The stabbing/sho...
1 month 29 days post op in Pudendal Decompression Surgery
Good things 1) Today was a really unexpectedly good livestream from Mike Shinoda. He was working on a Blackbear song (another artist im in love with) 2) Had a good convo with one of my managers f...
1 month 28 days post op in Pudendal Decompression Surgery
Good things 1) Was able to watch the ending of the 320 festival. This was a 3 day all day concert and speakers event with all sorts of topics regarding mental health. 2) I was able to spend some...
1 month 27 days post op in Pudendal Decompression Surgery
Good things 1) Got to watch the 320 festival online. A lot of speakers about mental health issues, and music performances. 2) Got a good nap in. 3) The pain is at least not changing around and ...
1 month 26 days post op in Pudendal Decompression Surgery
I’m afraid of it Something that came to my mind today. I do really appreciate all the things people do say to me. I’ve been told that people admire me for how strong I am. That I can keep going “...
1 month 25 days post op in Pudendal Decompression Surgery
Good things 1) Had a good skype session with my urogynecologist. She’s gonna help me with meds for the next month. Then I have to go in for an appt in June. Not looking forward to that. 2) Woke ...
1 month 24 days post op in Pudendal Decompression Surgery
Good things 1) Got to talk to my uncle about work. I will be working MWF 10-12pm Central time until I can work everyday. I am taking some of my old tasks back. 2) I got to talk to my aunt CK and...
1 month 23 days post op in Pudendal Decompression Surgery
Happy Cinco De Mayo where the first time it fell on a Taco Tuesday it gets messed up by a virus with the same name as a Mexican Beer. Good things 1) Did some more reading 2) Had a few hours whe...
1 month 22 days post op in Pudendal Decompression Surgery
Happy Birthday Dad! Seems cliche to write that I have the “BEST DAD EVER” but its pretty darn true. Thanks for being that rock for me over the years. Thanks for listening and being here when I am...
1 month 3 weeks post op in Pudendal Decompression Surgery
Good things 1) It was a beautiful day weather wise, 70 degrees and sunny. 2) I went out and walked one lap and didnt overwork. 3) Stood up and ate a nice dinner with my parents 4) I was able to ...
1 month 20 days post op in Pudendal Decompression Surgery
Good things 1) Weather was nice today. 2) The burning stinging pain took a backseat 3) The bladder pain didn’t last as long in the morning 4) Got the dispensary switch thing figured out. 5) Star...
1 month 19 days post op in Pudendal Decompression Surgery
Good things 1) Talked a little more w my uncle about me working possibly next week or the week after. 2) Got outside and walked today 3) Took a bath today albiet, in bad pain 4) Made a smoothie ...
1 month 18 days post op in Pudendal Decompression Surgery
Good things 1) I am going back to work part time! 2) I was able to do some walking today 3) Made a smoothie today 4) Felt a little more productive today 5) The nerve-y stabbing stinging wasnt ...
1 month 17 days post op in Pudendal Decompression Surgery
Good Things 1) I was able to make some phone calls today. Still trying to switch dispensaries. 2) Got all the paperwork I need to get in order for AFLAC 3) No bladder or digestive issues today. ...
1 month 16 days post op in Pudendal Decompression Surgery
Happy Birthday to my uncle JK! I just wanted to say how lucky I am to have an uncle like you (if you’re reading). You have helped me so much through this nightmare I have been going through in wa...
1 month 15 days post op in Pudendal Decompression Surgery
Good things 1) Got the ball rolling at switching dispensaries 2) I had a GREAT laugh this afternoon when Mike Shinoda did his live stream. That ending was GOLD. 3) Was able to talk to some other ...
1 month 2 weeks post op in Pudendal Decompression Surgery
Good things 1) I was able to walk today! 3 laps around the cul de sac. It was a nice day. 60 degrees a little windy. 2) No bladder issues today. 3) I was able to get some writing done outside o...
1 month 13 days post op in Pudendal Decompression Surgery
Good things 1) Overall the pain today is SURGICAL and despite going to the bathroom it didn’t reach level 10 annoying. 2) No bladder burning spasm this morning! No bath needed. 3) I was able to...
1 month 12 days post op in Pudendal Decompression Surgery
Good things 1) Got up and right in the bath. Helped a little to pass the bladder burning I had going on. 2) Was able to talk to my aunt CK, which was nice. I miss her. 3) Overall the pain wasn’...
1 month 11 days post op in Pudendal Decompression Surgery
Good things 1) I walked again today 2 laps around the cul de sac. Feet have kinda been hurting. 2) The pain overall has decreased 40% from the ER levels that it was yesterday. 3) I felt a bit mor...
1 month 10 days post op in Pudendal Decompression Surgery
Happy 30th Birthday to Machine Gun Kelly I.e Colson Baker Good things 1) The bladder area burning/ spasm wasn’t as in my face today and passed quicker 2) I went for a walk around the cul de sac ...
1 month 9 days post op in Pudendal Decompression Surgery
Good things 1) Made a smoothie with my mom/ got new protein powder. 2) Was able to schedule PT for May 18th, depending on COVID 3) No bladder area burning today (just other issues in my face). Th...
