AnOrangeZebra ⋅ 35

I'm from the Chicago South Suburbs, in the process of moving to Middle Tennessee. I'm just a midwestern girl in the bible belt. I have several disorders that I blog about in order to reach a wider audience. I have Ehlers Danlos syndrome (EDS), Pudendal Nerve Entrapment Syndrome (PNE) , Maythurners Syndrome (MTS), & Multiple Vascular compressions. My interests include Linkin Park & Mike Shinoda, One Tree Hill, Plants N Animals, Tattoos, crafting, & the color orange.

"I've been to the bottom now. And I may go back again. Even if I can turn back time. There are things out of our hands"

Mike Shinoda

Entries 319

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Things to be greatful for: 1) I got in the pool for the first time today for ten minutes. 2) Pain was tolerable for about half of the day. 3) I was able to get quite a lot of digital file organi...


Things to be greatful for 1) Talked to my grandma, aunt, and cousin on facetime today. I missed them a lot. 2) Got a good nap in. 3) Had a good half of the day before it went downhill. 4) Was ab...


Things to be greatful for 1) Had a really good PT session. I learned a lot about whats going on with my ligaments and potentially how they affect me when im having a BM… the largest trigger for t...


Things to be greatful for 1) Recieved an email from Dr. Hibner. He says that he will be aiming to return to practice somewhere in Phoenix, AZ in Sept or Oct. He is such an attentive man who reall...


Things to be greatful for 1) Mike Shinoda announced that he will be releasing Volume 1 of an album series which will be released on July 10th. It’s a mostly insturmental album called Dropped Fram...


Things to be greatful for 1) I had a better day today than I did yesterday. Better mood too. 2) No bladder spasms today. 3) I got a lot done: emails out to potential therapists and I emailed Dr....


Things to be greatful for 1) My friends and family 2) Managed to get through another day. 3) Finished a whole show on Netflix. 4) Thankful that I have access to medication at least. 5) Thankful...


Things to be greatful for 1) I found some new things to watch 2) The stinging stabbing pain backed off only a little 3) Knocked a few more things off my to do list 4) Made some progress on some p...


Things to be greatful for 1) Had another good PT session today all though the relief only lasts a few hours. But it felt noticeably different. 2) I was able to connect with more people through he...


Things to be greatful for 1) Money issues are getting back in order 2) I was able to go to PT. My PT has spoken with hibners folks in Arizona to get an idea of how to help me. 3) Another PT appt...


Things to be greatful for 1) I made it through another miserable day 2) I had my online friends reminding me to keep going 3) I tried not to burdeon people. 4) Went to the dispensary.. 5) The bla...


Things to be greatful for 1) I got to spend several hours talking to my cousin AC! She came over and we sat on the deck. Missed her so much. 2) Got a few more answers in the rhelm of unemploymen...


Things to be greatful for 1) Had a horrendous day, but kept the anxiety under control 2) Took my walk around the cul de sac and got the mail 3) Got a lot of rest today. 4) I have been noticing a...


Things to be greatful for 1) Had a good father’s day with my dad. Spent some time w him outside. 2) Took my walk around the cul de sac 3) Had a few OKAY hours today. 4) Digestive & bladder p...


Things to be greatful for 1) Talked to my cousin Leaf for an hour or two. Miss her a lot 2) Was able to to walk to the mailbox 3) Pain is pretty “predictable” feeling despite it being bad in mul...


Things to be greatful for 1) Was able to sit outside for a long time despite the heat 2) Had a few really good hours today before it went downhill 3) The bladder issues were under control 4) Was...


Things to be greatful for 1) Got to see my husband today, good visit. 2) PT session today, learned more things. 3) Was able to walk around a decent amount today. 4) Got some unemployment money 5)...


Things to be greatful for 1) Got a good amount of work done today despite sleep deprivation 2) Layed outside for a good amount of time 3) Was able to walk to get the mail 4) Was able to have a lo...


Things to be greatful for 1) Went to the pharmacy/ grocery store and walked a lot. Wasnt overly tired. 2) Walked to get the mail, nice weather. 3) Made progress with unemployment! 4) Felt like...


Things to be greatful for 1) The sting stab pain was there but more of a scratch feeling, annoying but not on “I cant think straight” levels. I can function with this pain all though no one shoul...


Sorry guys! I will try and get back to the good and the bad. Things I am greatful for today 1) I was able to talk to two friends I haven’t spoken to in awhile. 2) The bladder pain has been most...




Good things 1) Mike Shinoda of Linkin Park answered one of my questions on his live stream today. 2) I got to see my husband… the first time in 3 months 3) The stabbing pain stayed at bay a littl...


Good things 1) Felt better than yesterday 2) Got through a dr. appt with minimal anxiety 3) Walked to the mailbox 4) Got some writing done 5) In a better mood Bad things 1) Worried about food and...


Books 3


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