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Good things 1) Made a smoothie with my mom/ got new protein powder. 2) Was able to schedule PT for May 18th, depending on COVID 3) No bladder area burning today (just other issues in my face). Th...

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Hey guys. Happy holiday =-) Good things 1) Was able to skype with my cousin AK. I miss her so much. I would love to live with her in Arizona someday. One can dream. 2) I got to listen to some rai...

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Hey guys! Good things 1) I did a walk around the house today. It was a nice day 2) The pain was relatively low until I used the bathroom. 3) I was able to get consecutive sleep last night/ some ...

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Hey guys. A little better of a day, but still in nerve pain prison. I sometimes wonder if I have another type of neuralgia like obturator or genitofemoral nerve. Because this shit follows a disti...

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Hey guys. I had a decent day Good things 1) I made a smoothie. 2) Pain wise: More of “new” types of pain that I didn’t experience pre op. Itching, stinging could mean healing? 3) Was able to get ...

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Hey guys. I am kind of in a mental rut. But here I am. I wish there was a way to tell how many people are reading these entries, but there isn’t on PB. If you are coming from the PN facebook grou...

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Just a warning that today was a really bad day. I will put some TRIGGER WARNINGS I guess about mental health, depression and what not. If you don’t want to read about these things I suggest you d...

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Hey guys! HAPPY BIRTHDAY CK! First of all I wanna say happy happy birthday to my aunt CK. She has been like a 2nd mother to me over so many years. For those of you who don’t know this is my aunt...

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Hey guys! I have made my blog public to a lot more PN suffers via failbook. I hope to reach a wider audience. So what I want to know from my new viewers are… what questions do you have for me abo...

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HAPPY EASTER! And Happy 1 month post op! Here’s what I have noticed. Things that are the same/worse now as pre op 1) Allodynia in the entire vulvar area and in between my leg and butt (left side...

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Good things 1) Watched up to Episode 5 of Tiger King with my mom (DONT GIVE SHIT AWAY!) 2) Overall the pain was not horrendous and I was able to lay fully on my back some more 3) The issues after...

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Good things 1) The pain that I woke up with didn’t stay that way all day 2) No horrendously bad distinct nerve pain after going to the bathroom today 3) No bladder burning or spasms 4) My dad has...

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Good things 1) Got unemployment filed! Thanks to my aunt CK for helping me! 2) I had a “decent” morning and afternoon before the pain kicked on. Same BS. Any movement, any rubbing of the area, or...

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Good things 1) Got the ball rolling on filing unemployment 2) My toilet seat came in. We had it shipped from AZ. I am just too tall and it helps not to have to bend over/ go down so far. 3) Was ...

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Hey everyone. You know the drill! 75 and sunny in IL today. Rest of the week 40’s and 50’s. Not that I care tho. It’s all these 4 walls for me. Good things 1) Had a great convo w my uncle about w...

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Good things: 1) Mostly unpacked from Arizona 2) Overall decent pain day 3) Was able to walk around more 4) Intense zapping episodes are short lived 5) No bladder area pain/ burning Bad/Weird: 1)...

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AIRPORT DAY! I am back in Illinois (groans). Traveling in the middle of a virus pandemic was SURE SOMETHING. WOW WOW WOW. I will let the below photos do the talking. I guess 2 weeks will tell. If...

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Hey guys! I got some feedback that people liked the good/bad lists I am doing so I will try to keep that up. Good things for today 1) I had a FEW hours of TOLERABLE pain levels this morning. Th...

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Hey all! Had a phone convo with Dr. Hibner. Things went well. Good things 1) It’s a good sign that I was numb in the right areas due to the pain pump post op. 2) My incision looks “good”.. the s...

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My dr. appt was cancelled due to COVID 19. I guess I can’t be surprised. I put underwear on today which was a gigantic mistake. Anything that even touches the outside of the spot where the nerve ...

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Finding it harder and harder to remain positive when the nerve pain is expressing itself almost identically to pre op. For awhile there the sensations felt a little different but that was because...

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My aunt sent me cookies! Very cute. Now that none of my bras fit since I lost weight, I guess I will put them to better use. Such a sad sad day. No I will most likely not gain any weight back....

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I went down the stairs today and checked out some cactuses around the condo complex. Please forgive how awful and skeletonlike I look. Maybe someday I will be a normal human again. Pain is back t...

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