Embrace_The_World_In_Gray ⋅ 32
I'm Dylanne. I'm from the Chicago South Suburbs. I have several rare disorders that I blog about in order to reach a wider audience. I have Pudendal Nerve Entrapment Syndrome (PNE) , Maythurners Syndrome (MTS), Multiple Vascular compressions, and Ehlers Danlos syndrome (EDS). This is a journey of ANGER INSPIRED. I am obsessed with Linkin Park & Mike Shinoda, Orange, Plants N Animals, Tattoos, crafting, the color orange, and MBTI personality testing.
"I've been to the bottom now. And I may go back again. Even if I can turn back time. There are things out of our hands"
Entries 185
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My EDS Challenge Day 16- Coping in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 11- Nature in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 9- Inclusion in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 8- Movement & Activity in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 7- Comfort in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS challenge Day 6- Management Strategies in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 5- Schools/Teachers in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge Day 4- A Day with EDS/HSD in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...
My EDS Challenge: Day 3 Symptoms in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awaren...
My EDS Challenge: Day 2 Diagnosis in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awaren...
My EDS Challenge: Day 1 This is me in Life with Ehlers Danlos
I am taking part in #MyEDSChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awaren...
Video Update- 1yr2mo post in Life with Ehlers Danlos
What are EHLERS-DANLOS SYNDROMES? The Ehlers-Danlos syndromes are a group of connective tissue disorders that are genetic and are varied both in how they affect the body. They are generally char...
1 year post op!!! in Pudendal Decompression Surgery
What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...
11 months post op in Pudendal Decompression Surgery
What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...
DNA testing in Life with Ehlers Danlos
I am going to start focusing less on my pudendal nerve surgery updates and transition over to a life with EDS public blog. I will try and tie everything together that way in terms of my PNE as we...
10 months post op in Pudendal Decompression Surgery
What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...
9 months 2 weeks post op in Pudendal Decompression Surgery
What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...
9 months 1 week post op in Pudendal Decompression Surgery
What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...
Dazzle in Life with Ehlers Danlos
“Having EDS is to share a body and a spirit that do not harmonize and to live in the gap in between, trying to make this liminal space a forever home.” Someone on one of the failbook groups I am ...
9 Months post op! in Pudendal Decompression Surgery
What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...
