Embrace_The_World_In_Gray ⋅ 31
I'm Dylanne. I'm from the Chicago West Suburbs. I have a condition called pudendal nerve entrapment syndrome.. I am 1 in 100,000. This is a journey of ANGER INSPIRED. I am obsessed with all things Linkin Park, Mike Shinoda, Chicago Sports, Plants N Animals, Writing, crafting, tattoos, organizing & the color ORANGE! I have been blogging since 2004 on open diary.
"I've been to the bottom now. And I may go back again. Even if I can turn back time. There are things out of our hands"
Entries 22
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Day 16 post op in Pudendal Decompression Surgery
I went down the stairs today and checked out some cactuses around the condo complex. Please forgive how awful and skeletonlike I look. Maybe someday I will be a normal human again. Pain is back t...
Day 15 post op in Pudendal Decompression Surgery
Some good news! It might not last but its definitely something that’s never happened before.
Day 14 post op in Pudendal Decompression Surgery
It’s been 2 weeks. It’s going to be at least 6 months or more of misery. And it’s beginning now that the pain pump is gone. Oh how I miss the pain pump. It did make everything numb in the spot h...
Day 13 post op in Pudendal Decompression Surgery
Overall, I feel helpless and hopeless. There is no right decision on going back home to IL. We go back when we were supposed to on April 3rd we risk getting exposed in the airport and exposing my...
Day 12 post op in Pudendal Decompression Surgery
I can walk without my walker. My mom has been pushing me to eat and walk more. Pain is back and worse than pre-op. And now it just becomes a waiting game. I’m extremely depressed. I guess were al...
Day 11 post op in Pudendal Decompression Surgery
Took a shower 100% on my own. Walked the balcony more. Rough day pain wise.
Day 10 post op in Pudendal Decompression Surgery
Continuing to walk! Maybe tomorrow I’ll go down the stairs! LOL.
Day 9 post op in Pudendal Decompression Surgery
Went to walk on the balcony!
Day 8 post op in Pudendal Decompression Surgery
Day 6 post op in Pudendal Decompression Surgery
Stepped onto the condo balcony for the first time!
Day 5 post op in Pudendal Decompression Surgery
Happy St. Patrick’s Day. The only drinking holiday that can get totally shut down due to a virus named after Mexican beer! First day on the couch!
Day 4 post op in Pudendal Decompression Surgery
Day 3 post op in Pudendal Decompression Surgery
I was finally standing up on my own! Again, this video is pretty unflattering so go easy on me. I have next to zero self esteem left.
Day 2 post op in Pudendal Decompression Surgery
This was the day I got released from the hospital. They kept me an extra day because I had bladder retention and I still wasn’t getting up and walking by myself. My mom thought that my release fr...
Day 1 post op in Pudendal Decompression Surgery
This was a really rough day. I got to talk to Dr. Hibner. I was an extreme basket case. I begged him not to abandon me. LOL. He warned that the hospital might kick my mom out because of COVID-19....
Hospital Gifts in Pudendal Decompression Surgery
My parents hate my tattoos. I told them how much Club Tattoo had meant to me because of Linkin Park and Chester Bennington. There is a Club Tattoo in Scottsdale, AZ where we are staying. I joked ...
ANGER INSPIRED in Pudendal Decompression Surgery
This is a story of ANGER INSPIRED. I have had PNE since birth and it got worse in 2013. I was just anatomically pre-disposed to this happening to me and it was only a matter of time. A ticking t...
Surgical Hallucinations in Pudendal Decompression Surgery
I didn’t realize how serious the COVID-19 was getting until the morning of the surgery. But it was too late. I was going in. Had my surgery been scheduled even a day later they most likely would ...
To Arizona in Pudendal Decompression Surgery
My parents and I leave for Arizona on March 7th 2020. Little did we know how much of an ordeal the COVID-19 bullshit was about to be. We were unsure if my surgery would be cancelled or not. But w...
What is PNE? in Pudendal Decompression Surgery
Pudendal Nerve Entrapment Syndrome Kaur J, Singh P. Introduction Pudendal neuralgia caused by pudendal nerve entrapment (PNE) is a chronic and severely disabling neuropathic pain syndrome.[1] It ...
Tattoo- Nobody's Listening in Pudendal Decompression Surgery
When I came to Arizona for the first time in November 2019, I realized that Chester Bennington’s tattoo shop was about 15 minutes away in Tempe. It’s called Club tattoo. I was almost not going to...
Dr. Hibner in Pudendal Decompression Surgery
If you know anything about Pudendal Neuralgia (you don’t) it’s that one of the major names for my disorder is Dr. Michael Hibner who is out of Phoenix, Arizona. If you are talking about PN expert...
