Embrace_The_World_In_Gray ⋅ 31

I'm Dylanne. I'm from the Chicago West Suburbs. I have a condition called pudendal nerve entrapment syndrome.. I am 1 in 100,000. This is a journey of ANGER INSPIRED. I am obsessed with all things Linkin Park, Mike Shinoda, Chicago Sports, Plants N Animals, Writing, crafting, tattoos, organizing & the color ORANGE! I have been blogging since 2004 on open diary.

"I've been to the bottom now. And I may go back again. Even if I can turn back time. There are things out of our hands"

Mike Shinoda

Entries 22

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I went down the stairs today and checked out some cactuses around the condo complex. Please forgive how awful and skeletonlike I look. Maybe someday I will be a normal human again. Pain is back t...


Some good news! It might not last but its definitely something that’s never happened before.


It’s been 2 weeks. It’s going to be at least 6 months or more of misery. And it’s beginning now that the pain pump is gone. Oh how I miss the pain pump. It did make everything numb in the spot h...


Overall, I feel helpless and hopeless. There is no right decision on going back home to IL. We go back when we were supposed to on April 3rd we risk getting exposed in the airport and exposing my...


I can walk without my walker. My mom has been pushing me to eat and walk more. Pain is back and worse than pre-op. And now it just becomes a waiting game. I’m extremely depressed. I guess were al...


Took a shower 100% on my own. Walked the balcony more. Rough day pain wise.


Continuing to walk! Maybe tomorrow I’ll go down the stairs! LOL.


Went to walk on the balcony!



Stepped onto the condo balcony for the first time!


Happy St. Patrick’s Day. The only drinking holiday that can get totally shut down due to a virus named after Mexican beer! First day on the couch!



I was finally standing up on my own! Again, this video is pretty unflattering so go easy on me. I have next to zero self esteem left.


This was the day I got released from the hospital. They kept me an extra day because I had bladder retention and I still wasn’t getting up and walking by myself. My mom thought that my release fr...


This was a really rough day. I got to talk to Dr. Hibner. I was an extreme basket case. I begged him not to abandon me. LOL. He warned that the hospital might kick my mom out because of COVID-19....


My parents hate my tattoos. I told them how much Club Tattoo had meant to me because of Linkin Park and Chester Bennington. There is a Club Tattoo in Scottsdale, AZ where we are staying. I joked ...


This is a story of ANGER INSPIRED. I have had PNE since birth and it got worse in 2013. I was just anatomically pre-disposed to this happening to me and it was only a matter of time. A ticking t...


I didn’t realize how serious the COVID-19 was getting until the morning of the surgery. But it was too late. I was going in. Had my surgery been scheduled even a day later they most likely would ...


My parents and I leave for Arizona on March 7th 2020. Little did we know how much of an ordeal the COVID-19 bullshit was about to be. We were unsure if my surgery would be cancelled or not. But w...


Pudendal Nerve Entrapment Syndrome Kaur J, Singh P. Introduction Pudendal neuralgia caused by pudendal nerve entrapment (PNE) is a chronic and severely disabling neuropathic pain syndrome.[1] It ...


When I came to Arizona for the first time in November 2019, I realized that Chester Bennington’s tattoo shop was about 15 minutes away in Tempe. It’s called Club tattoo. I was almost not going to...


If you know anything about Pudendal Neuralgia (you don’t) it’s that one of the major names for my disorder is Dr. Michael Hibner who is out of Phoenix, Arizona. If you are talking about PN expert...


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