Embrace_The_World_In_Gray ⋅ 32

I'm Dylanne. I'm from the Chicago South Suburbs. I have several rare disorders that I blog about in order to reach a wider audience. I have Pudendal Nerve Entrapment Syndrome (PNE) , Maythurners Syndrome (MTS), Multiple Vascular compressions, and Ehlers Danlos syndrome (EDS). This is a journey of ANGER INSPIRED. I am obsessed with Linkin Park & Mike Shinoda, Orange, Plants N Animals, Tattoos, crafting, the color orange, and MBTI personality testing.

"I've been to the bottom now. And I may go back again. Even if I can turn back time. There are things out of our hands"

Mike Shinoda

Entries 185

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I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to ...


I am taking part in #MyEDSChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awaren...


I am taking part in #MyEDSChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awaren...


I am taking part in #MyEDSChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awaren...


What are EHLERS-DANLOS SYNDROMES? The Ehlers-Danlos syndromes are a group of connective tissue disorders that are genetic and are varied both in how they affect the body. They are generally char...


What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...


What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...


January 23, 2021

DNA testing in Life with Ehlers Danlos

I am going to start focusing less on my pudendal nerve surgery updates and transition over to a life with EDS public blog. I will try and tie everything together that way in terms of my PNE as we...


What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...


What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...


What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...


December 18, 2020

Dazzle in Life with Ehlers Danlos

“Having EDS is to share a body and a spirit that do not harmonize and to live in the gap in between, trying to make this liminal space a forever home.” Someone on one of the failbook groups I am ...


What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...


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