Delta Upd8 in These Foolish Things

  • March 21, 2021, 8:13 a.m.
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  • Public

It’s been almost a week since I’ve last written and SO much and I guess so little has happened since then.

Mediport placement: On Wednesday, I had surgery to have a mediport placed under the skin in my chest. This is a device that creates a bump in my chest so that a nurse can poke a needle into it and that will deliver my chemo right into my main vein close to my heart. I was told I would be awake for this, however, when I asked Doc. D. about the stuff they call “twilight” he told me that he normally just puts the patient all the way under. So when my anesthesiologists came in (I had both a doc and a CRNA joining for this one), I asked if they could just put me under and they said sure - as long as the surgeon was OK with it. And apparently he was because the next thing I remember was waking up. It took a lot longer than we thought for me to come out of recovery, mainly because the hospital was SO freaking busy. I think there’s so much more stuff going on now that Covid is starting to slow. I could hear others in recovery talking about cancer. My dad took me home and I rested until he asked me to get up and take a walk around to make sure I was OK. We went to dinner and it was just a wonderful time. I never had to take any of the pain meds - just Tylenol, and the port area is very bruised, but apparently ready to rock and roll.

Back to Work: Was back to work the next day and man, are these days super busy. We are getting ready for a virtual trade show next week that I’ll have to miss most of, but I suppose that’s okay. I kind of got into it with one of the VPs who gave me some shit about something he gave me to review right before I left to have surgery and was supposed to be complete right when I got back. Everyone else doing this has a staff that were working on it and I didn’t, so there were some other people covering for me (thank goodness!), but I just couldn’t do it all so he picked on me.

Back to Oncology: After my big presentation on Friday morning at the office I had to head back to the oncology center and get a CT scan of my chest and abdomen and then go take a “chemo class”, which felt like the hardest part of all of this. It’s just a daunting thing to think about - especially the fact that there are so many side-effects. I mean, my surgeon says it a chemo that most people do really well with and then I go over to oncology and they are like, you’re gonna feel like this or that and the biggest side effect is neuropathy which will be cold sensitivity in my hands, feet and mouth/throat and they made it sound so scary somehow. I’m so happy that [Athena] was able to go with me again, because…HOW DO PEOPLE DO THIS ALONE?! I know I didn’t absorb all of the info, and I left there just feeling outrageously overwhelmed. So much so that I cried to my brother…my own brother (!!) and told him I need his help. I am so afraid of feeling barfy and crappy so I needed to take him up on his cannabis offer.

So yesterday was Saturday and the first day of Spring (which I didn’t realize until I was almost in bed). I took the dog for a nice long walk, went to look at an apartment (not super successful), tried to straighten up a bit and then my brother came over with his goodies.

He brought a vape pen, two cartridges of Delta 8 (which is not supposed to give you the paranoid feeling of weed, but it’s supposed to control nausea and stimulate appetite), and a few Delta 8 gummies that I can try. I am not a weed girl AT ALL, but I am grateful to have these tools at the ready in case I need them. My biggest fear out of all of this is that I’m going to feel barfy and terrible and I fear that will paralyze me.

I have a lot more to say about what’s about to happen, but I am going to close now to get some other things done. Good to come back on here and write some of this out. It always makes me feel better.

And as always, I love you!
GS


Last updated March 21, 2021


WizeArtWorx March 21, 2021

❤❤❤

Nash March 21, 2021

Nothing worse than being alone in a hospital. I am glad you have support. It is so strange I have an old friend back in Missouri who is having an experience almost exactly parallel to your own except it is in his bladder. He has his first surgery on the 31st. I am so anxious for him.

Ginger Snap Nash ⋅ March 22, 2021

Ah, I'm so sorry for your friend. Hopefully his surgery will remove all of the cancer and he'll be well on his way to recovery. Anxiety is REAL.

echopod March 21, 2021

Finally, something I can offer! Help on the weed stuff! Your mileage may vary, but for me, someone with all sorts of digestion issues, edibles are a toss up. Sometimes it’s okay (but not great), sometimes I’m locked in a prison of my own mind. And the same dose is different every time. PLUS, it takes a long time to wear off. Vaping, however, is fairly instant, and you can micro-adjust to where you want to be. If you go too far, it’s a lot less time to wait it out. I find the last thing I want to do when I feel sick is add another thing in my stomach. Totally suggest vaping only (for now) though it’s different for everyone. I think that micro-adjusting might be important if you are less experienced. Also, as a former on and off smoker, the ritual of smoking something, even a vape pen, is soothing. Not PC to mention but truth.

Ginger Snap echopod ⋅ March 22, 2021

Oh, thank you for these comments. Yeah, I did not want to vape because of the whole stigma thing, but after doing much more research I see that the vape is the way to go to get the immediate results that I am going to need.

Soliloquy March 21, 2021

You are so fortunate to have a support system to help you in so many ways! Glad to hear that the cannabis is an option, I’m learning a lot about it for a project at work and it’s maddening that it’s been shunned for so long. I hope it works for you!

Ginger Snap Soliloquy ⋅ March 22, 2021

I hope so too!! Fingers crossed.

Firebabe March 21, 2021

So glad you have a support system of sorts. I can't imagine having to try and go it alone because it is a lot of information and stuff you have to do. It would overwhelm anyone. Sending good vibes your way!

WhatDreamsMayCome March 22, 2021

Totally under...
... Perfect instant where what you don't know can't hurt you!
I'm glad the pain is manageable and you have good counsel on the cannabis. ;-)

Marg March 22, 2021

What planet is that VP at work on?? He knows what’s happening to you right? I think anyone would find all this overwhelming - especially when you’re having to deal with work as well although I get it can be a welcome distraction from it all. Good you’ve got cannabis advice too and a supply ready if necessary :)

pandora March 23, 2021

I hope the gummies/weed help should you need them. Chemo does sound scary; I didn't realize there was a 'chemo class' but of course there should be.

Deleted user March 24, 2021 (edited March 24, 2021)

Edited

There are enough medications available to help with nausea and lack of appetite that I am confident in saying you will not have to resort to weed or over-the-counter THC or CBD products that have heaven-knows-what in them in heaven-knows-what concentrations and percentages and cause heaven-knows-what drug-drug or drug-condition interactions because they are made in heaven-knows-what countries in heaven-knows-what unsanitary conditions because they are not regulated. While everyone's experience is unique, not one of my friends who had chemo ever had to use weed, which, if you smoke it, has quite a few carcinogens in it right there, and they all chowed down when we saw each other. The only big difference was they they preferred blander, softer, and sweeter foods, more things like pancakes, waffles, etc. and not spicy, pungent, heavy, or acidic foods. Again, you might be different, but there are approved treatments for chemo side effects and they worked very well for my friends.

Will you feel tired? Sure, I would expect that. That seems universal. Everyone I know who has been on chemo has had to take disability leave for at least a few months because physically, they were just too exhausted. Then once they were exhausted physically, they got exhausted mentally and emotionally, so when it started to affect their performance, they put in for time off. PLEASE be kind to yourself with respect to that. This is one time you get to tell people "No, I cannot."

As for neuropathy, there are ways to minimize the risk, including special hats, socks, and gloves.

Big hugs!

Ginger Snap Deleted user ⋅ March 25, 2021

I'm going to see how I do with the nausea meds way, WAY before I resort to the other stuff, so thank you for that.

Thank you for all of this information. I am monitoring myself closely and honestly, taking it easy at the office - letting my engineer to all of the heavy lifting for now. I am definitely in a wait-and-see pattern here.

So far so good! But I'm only on Day 2, so... ;)

Jinn March 26, 2021

Just have those FMLA papers in reserve. In case .

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