Two long hard days..... in These titles mean nothing.

  • Jan. 21, 2020, 9:47 p.m.
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… and perhaps a third tomorrow.

Monday was the day Joana went for chemo and a discussion with her doctor. He wants to change her chemo. She is on three medications = I don’t know their names. He wants to cut back to one and then cut the dosage on that one. It’s the one she gets by pump so that means less time for the infusions but it still means that on the third day she goes to the local hospital to have the pump removed. He wants to do that for two months and see what happens. He’s always happy with her performance/her tolerance for the medication.

There is the option for having it done in college town which is 20 miles away instead of the city which is 50 miles away. But.... having it done closer would mean two trips - one for labs, one for chemo. He tells us carefully too that the medicine we would get at the nearer town would cost more than we get in the city - where they get a better deal from the manufacturer because they use more of it. Also if we keep going to the city (every two weeks) we can see him, and he is a very nice and capable man. So I think we will keep making the 50 mile trip instead of making two twenty mile trips.

While Joana was waiting for her chemo to be mixed and installed Jim and I went out for lunch - Joana gets lunch while she waits. When we got back she was finished and sitting by the main entrance waiting for us. That was good except we all forgot the return box for the pump and there wasn’t an appointment for removing the pump. We didn’t realize that until we were half way home. I mean to call today to try to fix it but I forgot and I was gone most of today. I guess I can call tomorrow even if tomorrow is the day she has the pump taken out.

When we got home yesterday, I went back to town to write my thing for the writers’ group and print it out and get some groceries. Including Tylenol for Joana’s sore back and pulled muscles.... even though she shops for herself twice a week.

Then today, I took her food and went to town and bought gas and picked up my companion writer and headed to the tiny town the writers group meets. It was a beautiful sunny day with sparkles in the frost/ice in the trees. The writers were short some but still a nice group. We had written about belief. Interesting to me was that several of the stories had ghosts in them. Several of the people believe they have lived in haunted houses. I’ve never noticed ghosts or hauntings myself. Unless Joana comes back - I would not put it past her.

On the way home we had lunch at a pizza place - we’ve been having a hard time finding a place to eat between our town and the writers town but this turned out pretty good. It was Taco Tuesday and we had a young male waiter who said he was a replacement from the bull pen. Three tvs were on to the impeachment trial prep - interestingly enough for a small town in Iowa, two were tuned to CNN and one to CBS. My companion said her husband watches Fox. We carefully skirted politics.

Jim had a dental appointment today. He also got Joana’s handicapped parking tags to hang from the rear view mirror. We finally appear to have jumped through the correct hoops. There are two and I think we will put one in Joana’s truck and keep one for the Buick. We will not cheat. I promise.

By the time I remembered calling about Joana’s appointment and the missing box for her pump - it was too late for business hours. So I will do that right away tomorrow morning. The pump goes in a labeled plastic box when it is removed from the port on her chest and then the box and pump are picked up by a currier and returned to the city hospital/clinic. They (or we) forgot one other time and the local hospital can put it in a plastic bag and send it back that way too. But we still need an appointment for have it done. It’s probably just a formality - after all it’s a hospital and they’ve been doing it for her every two weeks for going on six months, so it should be ok. It’s just something else to do/to think about/fun fun till her daddy took the t-bird away.

I have an appointment with Jacki with an I from the Klobuchar campaign tomorrow to discuss the caucus. It’s at 10 am at the library. This caucus deal is getting old. It might be fun, but it’s full of repetitious detail.

Phone calls.
- Jim had one last night asking polling questions and then asking if he wanted to be interviewed by the NYT. He said it would be ok as long as they didn’t want to film him.
- I had another poll tonight that was obviously pro-Trump. I was asked questions like: Do I support abortion up until birth. Did I support socialism/communism over capitalism? Was I in favor of totally open borders? And did I want to take everyone’s guns away? These impossible questions were being asked by a pleasant young woman who told me I had the option to refuse to answer specific question and I refused to answer the worsts ones. I told her I was sympathetic to her job - and wished her a more conservative person for her next call.
- I had my Jacki call described above.
- And a call telling me Mrs. Biden will be in college town tomorrow at their headquarters on main street next door to the bar/restaurant where LBH and I had cheesecake on our great tour of NE IA and the tri-state area. I could go over after the library meeting with Jacki, I suppose.

My current caucus strategy - that I tell everyone who shows any interest at all is to support Amy Klobuchar on the first vote. She’s my kids in Minnesota’s US Senator, she’s a scrapper from the Iron Range, she stood (or sat, I can’t remember which) on the grass at the Minnesota State Fair on the hottest, most humid day a British Columbian ever had to endure, and answered questions from the audience for a public radio show - and did a really good job.
I doubt she will be viable - meaning she will not have 15% of the vote, so then I will move to Biden’s group. I really want a woman president but I’m not a fan of Warren. I’m sorry, forgive me. I believe in real Democrats who know who they are from an early age.

Ok, that’s it. Thanks for bothering to read this collection of twaddle and drivel.

Have a good tonight and tomorrow day everyone. Be kind. Have fun.


Last updated January 22, 2020


woman in the moon January 21, 2020 (edited January 21, 2020)

Edited

If you have time, hit the Up arrow, and go back to On This Day 2017 - the one about Trump's America. See how it looks to you now.

rhizome January 22, 2020

our hospital does a single-day infusion setup too -- patients arrive a few hours early for labs, then come back a bit later to get their infusions. and i work in the lab trying to get the results out as fast as humanly possible. coming back on two separate days sounds terrible!

woman in the moon rhizome ⋅ January 22, 2020

Yes, when my brother went to the VA it was the same as your hospital and the one we go to. In fact the one we go to is better than the VA in that the lab, consults rooms and infusion are all on same floor, off the same waiting room. The VA was lab was in basement and other locations were on different floors - and in the middle they remodeled and MOVED the infusion temporarily and then back - I never could remember what floor it was on. VA was very good though. Both hospitals seems to be very caring and capable. The drugs seem helpful rather than a burden.

Sugar Magnolia January 22, 2020

I believe I have settled on Amy Klobachar too. Sent a donation last night.

Jinn January 22, 2020

I still like Bernie and his ideas. I am not interested in Biden. He wants to go backwards. Amy does not support changes to the medical system and that’s disappointing because otherwise I like what she says . Warren ; I am not fond of .

woman in the moon Jinn ⋅ January 22, 2020

I've been scarily involved in our medical system this last year and I'm scared of making sudden changes. We need to know what we are doing.

Jinn woman in the moon ⋅ January 22, 2020 (edited January 22, 2020)

Edited

I think if we follow the guidelines Canada, New Zealand , Denmark, Norway etc.. have we will have a good plan. People should be able to keep their concierge doctors and services if they are willing to pay for it , but with Medicare for all ; no one will be refused free care or forced into bankruptcy because they need treatment . One 5 hour stint in ER for $23,000 that was declined to pay by my expensive medical insurance ( because it was a car wreck ) convinced me . I was essentially given no care for $23,000 either and released with eight fractures in my spine and a severe concussion that the ER doctor did not find and the concussion he ignored. I should have sued and contested the bill but we didn’t . Luckily we had the resources to eventually pay it off but until it was paid despite making monthly payments I was regularly harassed by credit agencies . Others might have had to just declare bankruptcy. That is shameful. No one should lose everything they have because they got sick or hurt . No one should be refused treatment because Medicare or your insurance does not cover certain services or treatments. This country’s medical system is focused on legal robbery . Look at the price of insulin ; it is now 5 times the cost of what You can buy it for in Mexico and it costs pennies to make . It went from about $100.00 a month to over $500.00 . It’s gouging desperate people and people with high deductibles or no insurance are dying because of it . So many people say ;” I am doing fine and I do not want to pay more taxes to help out other people. “ The reality is that we already pay enough taxes to have Medicare for All but our taxes are being wasted and we do not hold the government accountable . We do not have an accurate budget and no attempt is made to balance it. It’s a fact that no one even knows how much is given to the Pentagon . No one knows how much is sent out in foreign aid or who gets it and for what . No one regulates government contracts , instead they are awarded as “ favors” to certain contractors and not awarded to get us the best services , materials , or workers at the best price . The lack of oversight and corruption in our current government is appalling :-(

woman in the moon Jinn ⋅ January 22, 2020 (edited January 22, 2020)

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I understand what you've said and for the most part I agree. I'm just hoping for a smooth-ish transition.
So you think Bernie would make the best president of those running? I was hoping for someone younger but there's not a lot of choice left. I think Buttigieg is too inexperienced.
Choosing a nominee is a little like shopping, you can go to thrift shops, or discount stores, or fancy boutiques. I need to write about that - should have done it when we still had the full complement of candidates.
Thank you for your opinions. I respect your views and your knowledge.

Jinn woman in the moon ⋅ January 22, 2020

I do not think the Democratic Party will give Sanders the nomination. I would bet it will be Warren:-( . I don’t care for her but I will vote for anyone opposing Trump at this point. Biden might have been a contender but his speaking events have been questionable . He seems to ramble, contradict himself, and misspeak often . I think he is trying to ride on Obama’s coat tails and Obama has not even endorsed him . Why ? There is something mysterious there .
You are so right that choosing a candidate is like shopping :-)
Thanks, I respect your opinions too :-)

Just Annie January 22, 2020

Sometimes I think life is just twaddle and drivel and I'm glad you are sharing yours.

ODSago January 22, 2020

We agree politically. Having a family member in treatment for cancer is such a strain...seems so in every case, but you are beloved if not by your family then by me...for giving support. For taking that on.

ODSago January 22, 2020

Oh, re: Klobachar -- I sense that after Trump we would have so much work to do to get the republic back where it is meant to be that someone like Klobachar would be perfect. So sound and logical and work oriented. I question if she can beat Trump. Nor do I think Klobachar and Warren could on an all woman ticket. None of the candidates are pristine choices but we must choose in the time to come.

NorthernSeeker January 22, 2020

The day we listened to Klobacher was hot and humid. She was very gracious and I'm glad we stayed around for awhile and listened to her. You will probably persuade a few people to vote for her on the first ballot. Oh, I did enjoy that cheesecake in college town too. That might be a bit of an incentive to travel to meet Mrs. Biden.

NorthernSeeker January 22, 2020

You are really busy with Joana, your writing, and the Iowa Caucus planning. You might need a day off once in awhile for self-maintenance.

Beret January 22, 2020

The pro-trump woman's questions are stupid. I know, there is no such thing as a stupid question but they are. NG is for Klobachar. Ultimately we are both for the candidate who can beat trump. I don't think Sanders or Warren can accomplish that.

ConnieK January 22, 2020

The chemo might be making her mind fuzzy and forgetful for things like Tylenol. Elizabeth is too much of a scold, Bernie comes off as grumpy grandpa. I like them as humans. I love their fire. But they lean too far left. At this point, it's more important to support the Democratic nominee, regardless of personal preference. Truth is, we need another JFK and we ain't getting it.

noko January 23, 2020 (edited January 23, 2020)

Edited

Best wishes for getting your 15% from the get go. I am not a happy camper about the primary and I live in a state that no one but us cares about (even thought we have a beautiful mountain :) We have a lot of people in the U.S.A. You would think that somewhere we could find a charismatic honest Democratic steeped in the tradition of the party but able to deal with all the new realities manifesting in the world right now. It makes me crazy that we have this group to decide among. I honestly don't think Biden is up for the job. But I will vote for him if he is the nominee. He would be better than what we have now.
Moving to Medicare and having to set-up supplemental inurance has convinced me that we do need radical change, not in health care, not at all, but in health insurance. There is a difference. I am so ready.

woman in the moon noko ⋅ January 23, 2020

Yes, it is so complex.... everything is.
Insurance is a mess. I, and my sisterinlaw now too, have a Medicare funded and some of our own money HMO with the major local medical concern - and it seems like it pays pretty good and you don't have that man in the middle thing you have with insurance.
Your description of the ideal but easily available Dem candidate is very accurate.

noko January 23, 2020

I can understand then, with the HMO why you wouldn’t want to rock the boat.

Serin January 27, 2020

All my calls are people desperately interested in the state of my air ducts.

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