We live to ride the rollercoaster again in Life, Liberty and the Pursuit of HAPPINESS

  • July 23, 2021, 2:05 p.m.
  • |
  • Public

My 6 year old daughter was back to herself yesterday morning after the introduction to her ADHD med debacle (previous entry). So much so that she woke up with an entire list of things for me and her to do. While this sounds sweet and endearing to some, I am the mother of TWO. Not only that, but I have my own things around the house that I needed to get done, so I could not fathom being asked 50 times a day when we were going to do something that I never agreed to do in the first place. I immediately decided that the best thing to do for her was to send her to camp. She fought it for a few minutes before I was able to convince her (on the day that she got kicked out of camp, I picked her up early and she forgot to grab her candy that she bought on the field trip).

As soon as I got home from dropping her off, I called the Dr. and told her that under no circumstances was I going to administer a 2nd dose of that medicine, and how my sweet, loving, fun, active child was a blubbering, depressed, and anxiety ridden child with dry mouth and a tummy ache all day. She lowered the dose. I talked to the receptionist on the phone for awhile. I remember meeting her at our appointment. She has 2 sons with ADHD, but she remembers her first son being diagnosed and what that felt like as a mother. She told me that the first medicine they ever tried made her son feel like “death was over him”. My heart just broke thinking about that. That’s how I feel every single day with my severe anxiety, so I cannot imagine my child feeling that. She of course did the same thing that I did and stopped the meds. The doctor lowered his dosage until they found the right strength, and she said now he’s thriving in school. She said by the time that she had her second child, she knew what to expect and it was easier. I’m realizing now, that when it’s not you going through it you really don’t think it’s that bad to just “try again” or “try a lower dosage”. This was the most terrifying thing for me as a mother. I CANNOT IMAGINE HOW MY daughter felt. However, the doctor sent in for another script and lowered the dose which immediately sent my anxiety through the roof. How was I going to tell my baby that she had to try it again?

When I picked her up from camp, I asked her if she understood why she was even taking medicine. Let me explain my child to you. My son has food allergies and bad eczema and a speech delay which has caused me to have a lot of Dr. appointments for him. He has creams and half benadryl tablet that I give him quite frequently. She often insists she needs medicine when she doesn’t because she sees that needing medicine gets you attention. I humor her sometimes and offer a peppermint or a cough drop or I offer warm tea. However, she’s always got some type of invisible ailment. She’ll come to me whining about a stomach ache and will suddenly stop whining and ask specifically for whichever medicine she thinks she needs (“the pink one that tastes like bubble gum”). ANYWAY, so I realized that even with having had the appointment, she may not have completely understood WHY she was taking it. That’s a mom fail on my part. She told me that she spent the entire day at camp telling everybody that she had to take a pill. She said this with pride because to her “needing medicine” gets you attention. I specifically told her that she didn’t need to tell anyone this, but here we are. LOL. So I explained to her that we’re trying to find the right medicine that will help her focus a little better, and how it should make her less bothered by loud noises and how she should be able to pay attention the way she wants to. I explained that we’ll be trying the same medicine again, but it won’t be as strong this time. She said she understood. I asked her if she was nervous to try it again, and do you know what she said? “No because I think it will be better this time.” As simple as that. It was in that moment that my daughter taught ME a lesson. I was inadvertently placing my anxieties on a 6 year old. She’s fierce and brave and ready to give it another go.

I’m going to be more prepared this time. I’ve already woken her up and given it to her this morning. I let her lay back down and go to sleep. I figured, the sooner it’s in her body the sooner it will be out if things go left. That was my biggest regret the other day giving it to her at 9am instead of 7am. We’re also going to be driving to my moms this morning, so being in an environment she wants to be in, and having my mom there to help will make a difference. We’ll probably go swimming while we’re there, so she’s got a lot that she’s looking forward to. I’ll be able to distract her better. I know the signs and what to look out for. I’ve got bottles of water ready (dry mouth). What makes her even more brave is to realize that it will pass if something does go wrong. I know the other day I couldn’t convince her of this, but now she has experienced it and knows that it will. PLEASE KEEP HER IN YOUR PRAYERS TODAY!


In other news, I had “the talk” again with my boyfriend about how I really need his support. I can’t remember our talk word for word or how it started. I was telling him about my phone call with the doctor, and there was something about his nonchalance and “she wasn’t calm at all” attitude that set me off. ADHD is a disorder. It’s not something she has control over. Having never dealt with it before, he doesn’t understand the process. I was hoping that the first medicine would work, but it’s really unrealistic that it would. Her body will tell us when we’ve got it right. He also made comments about how one minute she would be saying her stomach hurt and the next minute she would be fine. Do I think she embellished a little bit? Yes. Toward the end when the medicine was nearly done, I do think she was taking advantage of the special treatment and attention. What do I care? She’s 6 and she went through a traumatic event. She deserved the extra cuddles and warm tea that she was awarded. My issue with him is that he does not understand kids. He understands parenting from his parents point of view (which we all do). While some of us want to do better, he thinks the way he was raised was best. He often tells me about how his birthday wasn’t celebrated or how they didn’t go on trips or how his father would “get him in line” and every time I stop and hug my kids or do something for them, or listen to them, he always makes comments about how I let them “bully” me. I always always always look him in the eyes and say “I’m sorry”. Not because I’m apologizing for loving my kids but because I am sorry that his 2 parents didn’t show him love the way my single mother showed me. I NEVER criticize how he was raised, but he always makes comments about my parenting and it BOILS MY BLOOD. It’s a trigger for me, and he knows that. I used to get sad, but now I’m starting to get mad. Why would someone who knows I’m doing the best I can, make misguided comments to me that he really should have aimed toward his parents (both are now deceased). It’s like a child acting out. I don’t know how much longer I’ll actually put up with it. He’s in a wheelchair, so people think he can do no wrong, so he’s gotten away with a lot. He’s got anger and animosity from his accident and from those that have wronged him because of it, but that wasn’t ME. I’m not your verbal punching bag.


Cutiedotie July 24, 2021 (edited July 24, 2021)

Edited

Oooh mummy, (that's how we address all our parents in school, everyone is our daddy/mummy.) I read all your entries today, I'm so sorry, I should have done it sooner! I can't say I totally understand all the struggles, but some.

I once had an ADHD kid in my class, a boy, let's call him J. He had graduated and reading all your entries kinda made me miss him! So, I totally understand the part where your daughter floods you with questions! That's what J always did. And he would go on telling me where he went to vacation, stayed on which floor, that he pressed the elevator lift (he loves buttons thing). And the part where your daughter asked for hugs when she did something wrong, that's what J did as well! Sigh...I can totally understand the struggles of yours at that moment, to hug or not to hug. And he would cover his ears when he heard a thunder, even a thunder from video, hahaha. Oh my, I really missed him!!

And about behaviour in class, of course, J walked around when I was having class, hahaha. He loves all the buttons, my remote control, the switches and he just can't keep his hands to himself. But there are times that he was 'calm' and steady. Sometimes, when he was so 'out of control', I would know that something happened before he went to school, like maybe he gets scolded by his parents or something else. I understand the helplessness that you feel. Sometimes when his behaviour was too distracting, I couldn't have my class going, and that made me wonder am I bad at class control. But we don't report everything to his parents, we don’t want them to feel bad or feel worried, we know that sometimes he just can't control his behaviour. Not that he's being defiant.

It's good to get help from therapist. Early intervention programmes really help. Our school collaborates with an early intervention centre. So sometimes teachers from that centre would come to our kindy and observed how J behaves in class. And we would talk about his behaviour. His early intervention teachers would teach me how to handle those situations and what's exactly to be expected from him. Because I’m not specialised in handling special needs children, so what I know is limited. I need other professionals to help me.

You can't do this alone. Don't get me wrong, you are a tough one! But getting help from others don't make you a failure. J's grandparents look after him too, so I don't think it's a big deal if you want to send her to your mom. She got to enjoy and ‘released all her energy’ while you got to rest, win-win, why not. Remember, you are not sending her 'away'.

J needed to unleash his energy too, so sometimes before I started my class, I would play a song and everyone sang and danced together. Or I would ask him to help me to give out books to other children. He was so happy to be able to help me out! I would think of ways to ‘use up’ his energy, so that he would be able to sit down and listen when I teach. Of course, sometimes he would just lie down and tell me that he’s tired, hahaha, especially towards the end of the day, time to go home. I knew what to be expected and I won’t get angry. That’s the importance of collaborating with teachers from EIP.

J is good at remembering things and he's good at music and movement! He always gets his beat right! I can’t do that. Every child is gifted, yours too! Like you say, she loves art.

And about your boyfriend’s opinion on your parenting, hmmm...I hope as things progress, he can be more supportive and understanding.

Raising children with special needs are challenging. Constant struggles and all the why and how. Your entries made me wanna read through ALL that I’ve learned and refresh it. And you're doing great! Hugs! ❤️❤️❤️

iwontsugarcoat Cutiedotie ⋅ July 30, 2021

Thank you again for such eloquently written stories and advice! I look forward to your messages because I know that I will be given some wisdom! J sounds so much like my daughter you are right. It never occurred to me because she is my first child that what I am going through isn't exactly the norm until she was diagnosed. I'm utterly exhausted everyday from the amount of energy that she needs from me. I wish the teachers I know were kinder and gentler. I am so afraid of what's to come as she gets older. Especially with school. I'm navigating uncharted territory as a parent and it is scary.

I ALSO work in education. I know I don't write too much about myself (yet), but I work with students with special needs. However I assist in classrooms with multiple children, so I'm never with the same student ALL day. I've dealt with children with ADHD, but I think because it's work then it's easier to deal with. I don't have to go home with those kids or spend all day with them. I don't know them inside and out like I know her. I don't have to take them home with me.

I will definitely start allowing others to help and guide me because as you said, this is not easy. I for some reason always feel like as a single mother that I'm supposed to suffer in silence.

Cutiedotie iwontsugarcoat ⋅ July 30, 2021

I wanna affirm you, again, that you're great! And oh, please don't think that you're supposed to suffer, that would make me feel sad. You deserve everything good in your life, everything good! Despite being single or not a single mother.

It's very wise and BRAVE, I must say, to bring her for a diagnosis and look, how far you've achieved! It may still look chaotic, but things are getting better, things are improving, right?

We sometimes deal with parents that denied their children's status, even though given advice from the EIP teachers to get a doctor consultation, they won't go. I think it's our culture and mindset, if your children are 'not normal', parents couldn’t accept it. They would keep finding excuses to ‘normalize’ their children, like, “Ah, it’s normal. Sooner or later, he’ll talk.” “Ah, he’s just being naughty, that’s all.” But as professionals, we know something isn’t right! And it's hard for us to help if parents are in the denial stage. It took a lot of courage to face something that you’re afraid of, but you did not back out. So, I would say you took a pretty brave and correct move in the first place!

It’s normal to be afraid of the unknown, haha, this somehow reminds me of the song ‘Into the unknown’. Just remember that your loved ones are always there for you! They’re your oxygen tank if you ever feel like drowning. You are NEVER alone wandering in the dark.

I’m pretty sure what you’ve been through now is going to make you stronger. Not that it's lucky to have it, but someday, someone is going to come to you because you would have the wise advice for them! You're going to be the one that helps them to walk past the darkness! Hugs!! ❤️❤️❤️

You must be logged in to comment. Please sign in or join Prosebox to leave a comment.