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  • April 22, 2021, 6:16 p.m.
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So the boy tested negative for Marfans and is positive for EDS. Which is hyper elasticity/ hyper mobility in the joints. We also had a lot of blood draws done, an ekg done. B nearly fainted with the blood draws. They got him started on some anti depressants. He got pretty upset and im glad he opened up to a few questions. So they are starting him on zoloft. On my front im given the option to try some adderall for my lack of focus and my energy. But as to my intense insomnia and lack of ability to sleep and stay asleep. Basically stop using electronics within an hr of bed.... Sigh. That dosent work.
They are also testing me for EDS and RA. When i was a teen i could do what my boys could. But as ive gotten older. T says maybe if i loose weight i would still be that flexible. But RA makes sense too. The joint pain i have fits it. My wrists fit it. the lack of mobility i have now fits it too. Who knows....


music & dogs & wine April 22, 2021

I have a friend on here who was recently diagnosed with EDS, I had never heard of it before her.

ChainedChrysalis music & dogs & wine ⋅ April 22, 2021

my mother in law has it. And a friend does. Ive heard of it but not a lot of research on it.

❤️vee April 22, 2021

I've been tested for EDS, but I don't have it. I know quite a few people who do though.

Lis April 22, 2021

xx

Jinn April 24, 2021

😔

Small Town Girl April 26, 2021

At least you are getting some answers!

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