What don't I do? in Thirty-Four

  • June 25, 2019, 5:54 p.m.
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God you guys, I’m so bipolar sometimes. Things are ok. We have another lady coming out tomorrow to look at the house. We have options. It’s just sometimes hard to see.

Randy and I talked about a lot of shit over lunch today. But I’ll get to that in just a minute.

He had an appointment with his Neurologist from the hospital, Dr. Teeple.

Some of the first words out of the Dr’s mouth was “you’re a hot mess”.

He was diagnosed with Thalamic Pain Syndrome or Dejerine-Roussy Syndrome.

Dr told him that particular condition is untreatable. There are a few options to treat it chemically, but they generally don’t work and physical therapy, along with electrical stimulation also have shown to “help” but not cure. He told him he will most likely have to live with it the rest of his life, since he has that 19mm hole in his brain and that is what is causing the DRS.

He told him he will just have to learn how to live with these symptoms and make life manageable for himself because the DRS will not go away. Dr. Teeple is going to enter a lot of notes into his file about the DRS, his depression, his injuries, and so on and so forth, that way the case manager can go back and look at the new stuff and hopefully he won’t have to have the neurological exam.

They also ordered an EEG to see if there’s something going on with the seizure like things he’s had (3). They will follow up with him after the results of the EEG come back. So there is all of that going on with him and at least we have some kind of diagnosis other than stroke. It’s extremely frustrating to have all this happen and think it’s just going to go away someday, or get better, then to find out that it most likely won’t and he will have to live with it for the rest of his life.

SIGH

So that is what is going on with him right now. He’s a little bit more at ease knowing that he’s not going crazy with all the shit going on and that there is something actually wrong with him other than the fact that he had a stroke.

We talked about a lot of things other than that, but nothing super important to mention.

Uhmmmm yeah. I gotta take pics of some dishes and stuff I have so one of my friends can see if she wants to buy some of it. I just need a few bucks to get some ejuice and some MMJ. That way I can calm myself down and deal with everything. I know, I know, not healthy, but fuck it.

Alrighty, I guess that’s about all I gotta say, hope you are all doing well. Take care.


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