I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awareness and community.
Day 7 of the challenge: Comfort
I dont think ive been completely comfortable since before 2013. Existing in this body is tough. my pelvis is constantly out of alignment because my muscles are tight and trying to protect my tissues from injury. I used to get steroid injections for the pain but they did not help me long term.
I would say my most comfortable moments are in bed (not sure what the right bed is yet) and with the right pillows. i spend a lot of time switching positions and alternating what side i lay on. I also find a lot of comfort in epsom salt hot baths when the muscle spasms are bad as well as the digestive pain. Getting massaged is very nice also but make sure you get a PT or massage therapist that wont put too much pressure on your muscles. I take kratom for mood enhancement. If the neuropathic pain gets too high, I will sometimes resort to pain meds but this doesnt happen often.