The Continuum of Uncertainty & Affliction in General Mental Anesthesia

People often say to me “You should take this or that or have you heard of this?” etc… in regards to my health. I’ve posted pics of pills before, but today I did a video describing what I am currently taking daily. It’s an abbreviated (in-depth) breakdown into my life and how I’ve survived beyond what the Dr’s have said I would. I’ll post it below.

I don’t know how much longer that will continue, but I’m doing everything that I can until I can see my homeopathic doctor - Dr. Bonnie Mackey down in West Palm Beach, Florida.

Raising Money For My Health

Lastly, I apologize for my voice in the vid, it is very strained because of my back issues and also, I have a come and go lisp (which I’m very sensitive and embarrassed about) due to the fact that I still have my wisdom teeth and they are crushing and pushing around my other teeth which (is not only extremely painful) as many of you know, but causes that speech impediment which I don’t normally have. I don’t like to talk about it, but I pray that I can get it fixed soon.

I also got a referral for an MRI on my mid to upper back at the hospital. I figure having it done at the hospital would save me upfront costs and that charity care which I’ve been working with will cover it once I’m approved, but as my luck would have it, since I’m not yet approved, the MRI will cost about $2800 or 20% of that upfront. Looks like I’ll never find out the extent of the damage in my back which means treatment options are next to nothing. :(

On the colitis front, I was seeing an improvement (at least I was going to the bathroom less and generally in less pain) it was the best I had felt since September 2017, but it only lasted a week as my GI Dr’s are weaning me off the Prednisone as just as I tried to explain to them… as soon as you do, I’ll get worse… and I am.

Last night I was violently ill, dry heaving and severely nauseous for the first time in a month, sick throughout the day and the pain was through the roof. Today, I am trying to move as little as possible. My desire however is to climb a mountain… I despise being inactive!

Lord have mercy… I only sneezed and it feels like I just took 10 lashings to the back with this!!!

Oh… and here’s some news. So my GI was impatient and although (Remicade) has been the #1 option and goal, they had to find out whether or not I was approved for Medicaid or not. If I’m approved, I’m not applicable for financial aid to get Remicade (which costs $14,000/month without insurance). At which point they’ll try the 2nd option (Humira).

My Dr’s kept pushing me to get an answer, I called and called and harassed the gov, but they’re slow as molasses. So my GI just handed me Humira paperwork to get something going as my health is so poor and my days are numbered.

So I fill all that out and turn it in etc… then, a couple of days ago, I officially receive the paperwork from medicaid and of course (I was denied) It’s unfucking believable!

But the silver lining is that I can call my GI and they can go ahead with the original plan. But for whatever reason they are sticking with Humira (which I may or may not be financially approved for). That kinda pisses me off. After all my efforts, after everything I’ve done… when I finally get the results that they’ve been asking for… they don’t care.

Ugh.... seriously???

Here’s a #flashbackfriday photo for you…

To a time in my life when swimming at 2am was a regular thing. In remission from IBD / ulcerative colitis, before back injuries… A time that I wish was now, not just nostalgia. A time when I worked hard and rewarded myself by playing hard! I do miss it....

The video as promised.

Last updated June 01, 2018