3am. in 2013

  • Oct. 9, 2013, 7:20 a.m.
  • |
  • Public

It's 3am. I've been up since 1. I'm on the couch with both kids writing this from the iPad. This happens often. I've been surviving on redbulls and coffee.

Just an update, no real "news." Friday I dealt all day with phone calls and insurance, but came out no better off. Monday we found out Josh's old insurance is active for a short time now. So, I called and made an appointment for this Friday for a hearing test -- they won't evaluate any further for autism or anything else until hearing is tested. I also made an appointment with our regular pediatrician, in two weeks from now.

Yesterday, we had our official first appointment with the behavioral therapist, who did the mchat evaluation. He "failed" it -- which I knew he would, it's basically just the first step in assessing for autism disorders. It was mainly just asking me questions, looking for the signs, etc. So, with that done and the hearing test Friday, she will come back, along with our regular therapist, and someone else, next Friday, for more assessments (the ADOS assessment).

Right now it's just a lot of appointments and a lot of waiting in between. I'm trying to get my hands on any good books, but the ones I checked out of the library are some 25 years old. I need more recent research. And I really liked Jenny McCarthys book, because it wasn't just "medical findings" but a mothers actual story. When all of this is said and done, maybe i will write a book.

When I called Josh at work to let him know that we are recommended for more testing, evaluations, and assessments he seemed shocked, once again. He's still in complete denial. I'm in the research and educate phase, but ignore the actual reality of it phase. It keeps me busy. Too busy to think. We will do all we can. We will look into all options.

I'm strong, I can do this.


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