The Crimes of Capsule & GI in General Mental Anesthesia

Long day.

I spoke to my GI’s office first thing & explained to them (I guess that’s putting it mildly) about the certified letter I received stating that I was denied chemotherapy for my severe & chronic ulcerative colitis.

They told me to keep my infusion appointment for tomorrow because my situation is literally life and death, and that they would handle it immediately.

Whatever…

I had a Dr’s appointment after that & then when I got out, my GI’s office called me. They said: You’re approved, we fixed the issue, but we can’t get the medicine in time for your infusion tomorrow; it’ll have to be Monday. So much for ‘urgent’.

Now, I’m confused. I guess I’ll still be starting the chemo, but to be honest… I’m really not 100% sure. Maybe yes? Maybe no? I suppose I’ll find out on Monday. I just don’t have any trust with anyone anymore. I certainly don’t want to get a bill in the mail for $15,000!

Now there’s another complication. I had been given a small amount of Prednisone which is the only reason I’m not writing this from the hospital right now, but believe me; things are still so bad that I contemplate going to the ER every day. Since the infusion is pushed back, I don’t have enough medication. I called my primary care and she didn’t write the prescription because my pharmacy never texted me. She’s nice, but scared of her own shadow when it comes to writing prescriptions. She’s certainly not helping me.

First of all, I just need to start the chemo (hope that it works (which will take at least 6 weeks before I notice anything, that is if it even has a positive effect)) and I just need to have enough prednisone to get through that period. That’s it! I can’t wean off now and I definitely can’t stop abruptly. The process has to be slooowwww.... After 26+ years… I know what the hell I’m talking about!

Another thing that bothers me. I NEED to be on a good probiotic, I mentioned this recently on here I think. I ‘should’ be taking VSL #3 (4/day) if you know anything about it, yes, that’s a tremendous amount, but that’s how sick I am. VSL #3 is an ulcerative colitis specific probiotic, but I can’t afford it, it’s very expensive. Enter Saccharomyces Bulardii; a decent second option at a 3rd the cost, I need to take 2 / day. I specifically need it because I’m on c-diff watch as I recently finished multiple rounds of antibiotics and I have a history of c-diff.

Now, I’ve taken this before, but the bottle I just received… the capsules are only 3/4 the way full (many of them only half full). Where the hell is the quality control??? I’ve already written them a strongly worded letter.

How would you feel if you opened a bottle of capsules (any kind, vitamin, supplement etc…) and you saw this?

Disappointed. :/

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BTW… I was on top of it right away, but I wanted to say: “Thank You” for the messages about what to do regarding this screw up with my GI. I’ll have to call them tomorrow about prednisone as I evidently can’t rely on my primary care. I appreciate the help and support!