my life with a child with Cerebral palsy in Cerebral Palsy

It took over a year for you to be conceived. Easter weekend of 1999 is one of the best times of my life because I found out about you.
I did everything I could to keep you safe and healthy. I had a great ob/gyn. And seen him regularly. Your grandma couldn’t cook bacon for two months because the smell made us sick. You also decided I needed all day sickness instead of morning sickness.
I went into labor with you December 1st 1999. We met face to face December 2nd 1999. You were the most beautiful little girl in the world to me and you always will be.
We took you home but we had to take you back and forth due to yellow jaundice because your bilirubin levels where high.
You weighed a little over 5 lbs and had to wear preemie clothes because regular sized baby clothes where to big for you.
At a week old when I’d put you on your tummy you would scream, because it hurt. Then of course we had issues with bowel movements. Your doctor acted like it was no big deal.
I asked about you keeping your hands fisted at almost 6 months and was told you would grow out of it (no you won’t).
Then you got sick and was sick for a while. I was pregnant with your sister Allana and I told your doctor I wanted answers because I was tired of his crap…
So at 10 months old you are tested and we found out you have Spastic Quaderplegic Cerebral Palsy with left displegia. My dreams and hopes for you were shattered. I called and hunted down everything I could on cerebral palsy. And I was crushed. But I also knew what I had to do.
The process started and the doctor appointments, and all information I could find. I educated myself so I can be the advocate for you I can be.
You have had several major operations and we are not done. Wright now you are in pain and I can’t stop it! You have a appointment today with your surgeon and I pray we get answers but unfortunately my gut is saying another surgery.
We do not need surgery yet.