So I do have cancer.
Stage 1B endometrial stromal sarcoma. There isn’t a whole lot on this type of cancer as it is rare and if it comes back, tends to find another place such as the liver or lungs. Studies from 2019 to 2020 indicate chemo plus radiation. With treatment my survival rate is 50%, without 30%. The dr said if I want a second opinion, he would suggest Sloan Kettering. I might do that but I told him I want to start the process ASAP.
I am scheduled for a port next Thursday and chemo the following Monday. I can start treatment and stop anytime I want, obviously, as well as start treatment and still get the second opinion. I know no one can tell me what to do but I asked him his recommendation if he would give it to me and he said he would go with treatment. Again with second opinion, would treatment options be any different and his PA said not really because I flat out asked her if she would tell me. I also asked her if she knew of anyone who survived and she said yes. It was reassuring because all the research I had found was for stage 3, not much for where i am. This is because it is so rare and most of the people for the stage 3 diagnosis were in their 50s. The dr said i have a lot going for me, I am in good overall health, I look at least 15 years younger than my actual age and I have a good attitude (I did get some emotional it I didn’t fall apart in front of him, that came later at home). The best remedy for fighting the effects of treatment he said were exercise, even when I don’t feel like I can do, it but a simple walk around the block can do wonders and a good diet. I feel confident that he is telling me the truth because his wife has leukemia.
I will lose my hair but most of the time it comes back. The Paxman cool cap can be given to offset that but it is expensive and out of pocket. In addition, it isn’t available in my location for a couple of weeks and then staff has to be trained in its use. I don’t want to wait any longer than I have too.
I would still like to be able to move because even tho I will be going thru treatment and it will be hard, I think it would keep me focused.
I am sure I am leaving things out but am just too exhausted right now.
I haven’t read anyone but will soon, had to get this entry out.
Last updated April 28, 2021