31 Days of EDS/HSD: Day 1 You & Your Part of The World in Hypermobile Life
- April 30, 2023, 10:29 p.m.
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- Public
I am taking part in #MyEDSChallenge and #MyHSDChallenge with the Ehlers Danlos Society. Since May is EDS awareness month, every day I will be sharing something about myself and my EDS journey to drive further awareness and community.
Day 1- You & Your Part of The World
My name is Dylanne, welcome to my world. I was diagnosed with HSD in 2020 when I was 31 after a lifetime of strange issues. In May of 2022 I was able to see Dr. Francomono in Indianapolis. While I dont meet the hEDS criteria (I was one point off), there is definitely issues with my tissues. My largest issues are neuropathy, specifically pudendal neuralgia, and vascular compressions such as maythurners, pelvic congestion & nutcrackers syndrome. I also have POTS and a variety of other issues that make living with HSD a nightmare.
I was born and raised in the Chicago suburbs and I am in the process of moving to Middle Tennessee. It is beautiful here, and I can’t wait to live here. I am in the process of rebuilding my life and starting over in 2023.
music & dogs & wine ⋅ May 01, 2023
Love this! My boss used to live in Lynchburg, but recently relocated to Columbia. Both are farm properties, lots of land and animals. She now has 6 goats, she bought two preggo ones and they each had two babies. She has like 50 chickens and 6 ducks...it sounds so nice! My ex lives in Hendersonville, slightly north of Nashville, he commutes into the city for work. He loves it there! I hope you can find your place there 🧡
AnOrangeZebra music & dogs & wine ⋅ May 01, 2023
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