AnOrangeZebra ⋅ 35
I'm from the Chicago South Suburbs, in the process of moving to Middle Tennessee. I'm just a midwestern girl in the bible belt. I have several disorders that I blog about in order to reach a wider audience. I have Ehlers Danlos syndrome (EDS), Pudendal Nerve Entrapment Syndrome (PNE) , Maythurners Syndrome (MTS), & Multiple Vascular compressions. My interests include Linkin Park & Mike Shinoda, One Tree Hill, Plants N Animals, Tattoos, crafting, & the color orange.
"I've been to the bottom now. And I may go back again. Even if I can turn back time. There are things out of our hands"
Entries 319
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5 months 1 week post op in Pudendal Decompression Surgery
What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic flo...
5 months post op in Pudendal Decompression Surgery
What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic flo...
4 months 3 weeks post op in Pudendal Decompression Surgery
What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...
4 months 2 weeks post op in Pudendal Decompression Surgery
What is pudendal Neuralgia? PN is pain, discomfort or numbness in the distribution of the pudendal nerve. The pudendal nerve is a peripheral nerve that is the main nerve of the pelvis/ pelvic fl...
4 months 13 days post op in Pudendal Decompression Surgery
Things to be grateful for -Went out for a walk this morning despite the high humidity/ heat and increased pain -Was able to talk to some more PN folks. -Had a few good hours of the day early in ...
4 months 12 days post op in Pudendal Decompression Surgery
Things to be grateful for -Beautiful weather -Got to walk twice -Was able to get 2 hours of work done despite feeling like shit. -Was able to run one errand early in the day -Broke up the awful m...
4 months 11 days post op in Pudendal Decompression Surgery
Things to be grateful for -Was able to take a walk despite horrendous 50-50 stabbing and bladder burning issues -Made it to PT despite anxiety about being in the car. -Had a good talk therapy se...
4 months 10 days post op in Pudendal Decompression Surgery
Things to be grateful for -Came out of the horrendous bladder spasm i was having overnight. -My mind didnt go to the negative as badly during the episode I had. -I was able to get some latchook...
4 months 9 days post op in Pudendal Decompression Surgery
Things to be grateful for -Was able to see my cousin AC for a few hours. -Mike Shinoda was back online today. -Was able to come down a smidge from the horrendous flare I was having earlier in ...
4 months 8 days post op in Pudendal Decompression Surgery
Things to be grateful for -Was able to get out to run an errand today, get my cars emmissions test and registration done. -Took a walk today -So far today the bladder area burning is not in my ...
4 months 1 week post op in Pudendal Decompression Surgery
Things to be grateful for -Got to watch a cool storm roll in today -Went for a walk after the storm passed. -Got a good nap in. -Got some reading done. -Was able to talk to some people who ha...
4 months 6 days post op in Pudendal Decompression Surgery
Things to be grateful for -The pain wasn’t as intense today as yesterday but more of an annoying maddening itch i can’t scratch feeling. Feels like barbed wire that was not on fire but itchy. -I...
4 months 5 days post op in Pudendal Decompression Surgery
Things to be grateful for -Got out for at least one walk today despite pretty bad burning pain -Was able to watch Mike Shinoda (this is getting repetitive lol) -The pain didnt last super badly ...
4 months 4 days post op in Pudendal Decompression Surgery
Things to be grateful for -Got an hour or so of relief from PT today -Had a good talk therapy session -Had a few good hours of the day where my mood was good. -Enjoyed Mike Shinoda’s stream as u...
4 months 3 days post op in Pudendal Decompression Surgery
Things to be greatful for -Got one walk today. -I love the rain when I don’t have to drive in it. -Got some work done for 2 hours today. -The bladder spasm was not an issue at all today. -Ha...
4 months 2 days post op in Pudendal Decompression Surgery
Things to be greatful for -Got a good walk in today -Had short naps during the day -Felt like the bladder spasm was going to be worse than it was tonight. Keep feeling that type of pain coming an...
4 months 1 day post op in Pudendal Decompression Surgery
Things to be greatful for -Was able to go on a walk today, the weather was great. -Feel like I got a good chunk of work done today. -I enjoyed watching Mike Shinoda’s stream today -Had a good f...
4 months post op in Pudendal Decompression Surgery
Things to be greatful for today -Was able to do 10-15 mins walking today -Had several good hours today -On my period which makes the pain less intense than normal. -Digestive issues remained in t...
3 months 29 days post op in Pudendal Decompression Surgery
Things to be greatful for 1) Got a few things done today. 2) Had a couple good hours of relief. 3) The digestive issues werent horrendous today. 4) Was able to do some latchooking the other nig...
3 months 28 days post op in Pudendal Decompression Surgery
Things to be greatful for -Bladder pain wasnt as in my face today -Watched one of the most hilarious streams of Mike Shinoda for his album release -I am continually reaching out and talking to ne...
3 months 27 days post op in Pudendal Decompression Surgery
Things to be greatful for 1) My mom drove me to PT today. My PT helped me out of a bladder spasm from yesterday. 2) Nerve pain was converted back into PN specific pain which is annoying but not ...
3 months 26 days post op in Pudendal Decompression Surgery
Things to be greatful for 1) I got a lot done today, moving and organizing my stuff. 2) I got to see my cousin AC, and I have physical therapy to look forward to tomorrow which gives me a few h...
3 months 25 days post op in Pudendal Decompression Surgery
Things to be greatful for 1) Went through a lot of my stuff today. 2) The pain wasnt horrendous, the stinging stabbing pain after a BM didnt last as long as normal. 3) Bladder burning was not an...
3 months 24 days post op in Pudendal Decompression Surgery
Things to be greatful for 1) Had a good PT session with a new therapist 2) Had a good time hanging out with my cousin AC by the pool 3) The pain backed off for several hours after PT 4) I was abl...
3 months 23 days post op in Pudendal Decompression Surgery
Things to be greatful for 1) I was able to swim for 15 minutes without any more or less consequence than I would have had from going to the bathroom or walking. I think I was more tired than in p...
